1994 EXCEPTIONAL PARENT TOPICAL INDEX Augmentative and Alternative Child Care his is an index of articles which Communication Devices What Happens Next? ...............c0 Sep 80 appeared in 1994 monthly issues (See also: Communication, Technology) Who Cares for the Children with of Exceptional Parent. Although all arti- © Augmentative and Alternative Chronic liiness and Disability? .....Sep 77 cles are of interest to both educators Communication Devices A Working Together Checklist (Provider, © Augmentative and Alternative Family & Early Intervention) Sep 80 and health care professionals, those Communication Devices, Children’s Page articles of special interest to these two Manufacturers of Friends and Classmates groups of readers have been marked © HEALTH INSURANCE TROUBLESHOOTER: Having a Sister with a Disability ........Apr 68 (#x = educators; # = health care pro- Coverage for Augmentative lf |C ould Give the World a Gift Dec 68 fessionals; © = both) Communication Devices x Real People, Rea! Technology, Living with Moebius Syndrome ABLEDATA (See also: New Products) Real Solutions My Brother The ABLEDATA Database x Rove Mopets: Walsh, Robert My New Brother of Assistive Technology A journey to communication with My Twin Sister Accessibility assistive technology RES Ee Oana) Jul 68 Buying and Converting: x Too Few Exceptions to the Rule Remembering Daniel Vans and lifts | Autism | Chronic lilness and Disability, Environmental Controls | *® Brain Differences in Autism Center for Children with Special Bathrooms An Exceptional Visit to Disney | #& Children’s Health Notes ..............0.. Mar 51 Step by Step: Creating no-step x The First Day of School | Children’s Health Notes entrances Not For a Nickel and a Dime | Coffin-Lowry Syndrome ADA (See: Americans with Disabilities Act, The) My Brother ADD (See: Attention Deficit Disorder) | College Education Adolescence (See: Teens) ®x Rote Mopets: Kemp, John Advocacy (See also: National Parent Network Bathrooms Part Il: Meeting the public on Disabilities) © Bathroom Access Aids, x Rove Mopets: Heumann, Judy From Rage to Reform: What Parents Manufacturers Of .............cesese Aug 47 Say About Advocacy Special Bathrooms # The Parent and Professional Alliance | Bereavement x Rove Mobets: Miller, Carrie Program | Remembering Daniel Harvard student-athlete talks Adrenoleukodystrophy (See: Leukodystrophy) | Remembering JOrdiC...............ceccecereeeees Oct 4 about growing up deaf Agenesis of the Corpus Callosum Blindness (See: Visual Impairments) x Rove Mopeis: Nemeth, Abraham lf | Could Give the World a Gift Dec 68 | Books (See also: Media) Creator of Nemeth code Angeiman Syndrome += Count Us In: Growing up for Braille mathematics Crying Can Make You a Better Man ....May 47. | with Down syndrome x Rove Mopets: Walsh, Robert Alliance for Technology Access Honor Thy Son A journey to communication (See also: Technology) SIBSHOPS: Workshops for with assistive technology *® Alliance for Technology Access Siblings of Children with Communication (See also: Technology) Special Needs. © Augmentative and Alternative ™ Alliance For Technology Access © When Young Children are Injured Communication Devices | Brooks, Garth © Augmentative and Alternative * Computer Resources for People Standing Outside the Fire Communication Devices, with Disabilities Sep 61, Nov 29 | music video Manufacturers of ™ Real People, Real Technology, © HEALTH INSURANCE TROUBLESHOOTER: Real Solutions | Camps, Summer Coverage for Augmentative Americans with Disabilities Act, The Selecting a Communication Devices............. Nov 68 Loving Justice: The ADA and | Cargnel, Stefano (see Roe MopeLs) | -®x Real People, Real Technology, the Religious Community | Cerebral Palsy Real Solutions Arts, The All in the Family x Rove Moots: Walsh, Robert x The Arts and Disability The Biggest Game A journey to communication x The Sky is the Limit ..........000000. .May 36 | A Date to Remember with assistive technology Ask The Doctor Dear Timmy x Too Few Exceptions to the Rule Flu & Pneumonia Vaccines * A Few Miles on the Ol’ Rocker Computers (See: Technology, Incontinence Grieving a Dream Telecommunications) a: Oct 16 | © |'m Bryan's Dad and Part Cushions (See: Seating and Positioning) Nutrition and Growth... Aug 18 | of His Team Cycling (See: Recreation) Respiratory Problems | 9% Real People, Real Technology, Transition to Oral Feedings; Real Solutions | Dating Felbamate | + Rove MooeLs: Rousso, Harilyn A Date to Remember Assistive Technology (See: Technology) Sex, Lives and Disability Deafness (See Hearing Impairments) Attention Deficit Disorder x Rove Mopets: Walsh, Robert Death (See: Bereavement) (See also: Learning Disabilities) A journey to communication Dental Care ®™ Listening to Learn with assistive technology * Growth and Development x Too Few Exceptions to the Rule Checklist 114 @ EXCEPTIONAL PARENT / JANUARY 1995 1994 EXCEPTIONAL PARENT TOPICAL INDEX Augmentative and Alternative Child Care his is an index of articles which Communication Devices What Happens Next? ...............c0 Sep 80 appeared in 1994 monthly issues (See also: Communication, Technology) Who Cares for the Children with of Exceptional Parent. Although all arti- © Augmentative and Alternative Chronic liiness and Disability? .....Sep 77 cles are of interest to both educators Communication Devices A Working Together Checklist (Provider, © Augmentative and Alternative Family & Early Intervention) Sep 80 and health care professionals, those Communication Devices, Children’s Page articles of special interest to these two Manufacturers of Friends and Classmates groups of readers have been marked © HEALTH INSURANCE TROUBLESHOOTER: Having a Sister with a Disability ........Apr 68 (#x = educators; # = health care pro- Coverage for Augmentative lf |C ould Give the World a Gift Dec 68 fessionals; © = both) Communication Devices x Real People, Rea! Technology, Living with Moebius Syndrome ABLEDATA (See also: New Products) Real Solutions My Brother The ABLEDATA Database x Rove Mopets: Walsh, Robert My New Brother of Assistive Technology A journey to communication with My Twin Sister Accessibility assistive technology RES Ee Oana) Jul 68 Buying and Converting: x Too Few Exceptions to the Rule Remembering Daniel Vans and lifts | Autism | Chronic lilness and Disability, Environmental Controls | *® Brain Differences in Autism Center for Children with Special Bathrooms An Exceptional Visit to Disney | #& Children’s Health Notes ..............0.. Mar 51 Step by Step: Creating no-step x The First Day of School | Children’s Health Notes entrances Not For a Nickel and a Dime | Coffin-Lowry Syndrome ADA (See: Americans with Disabilities Act, The) My Brother ADD (See: Attention Deficit Disorder) | College Education Adolescence (See: Teens) ®x Rote Mopets: Kemp, John Advocacy (See also: National Parent Network Bathrooms Part Il: Meeting the public on Disabilities) © Bathroom Access Aids, x Rove Mopets: Heumann, Judy From Rage to Reform: What Parents Manufacturers Of .............cesese Aug 47 Say About Advocacy Special Bathrooms # The Parent and Professional Alliance | Bereavement x Rove Mobets: Miller, Carrie Program | Remembering Daniel Harvard student-athlete talks Adrenoleukodystrophy (See: Leukodystrophy) | Remembering JOrdiC...............ceccecereeeees Oct 4 about growing up deaf Agenesis of the Corpus Callosum Blindness (See: Visual Impairments) x Rove Mopeis: Nemeth, Abraham lf | Could Give the World a Gift Dec 68 | Books (See also: Media) Creator of Nemeth code Angeiman Syndrome += Count Us In: Growing up for Braille mathematics Crying Can Make You a Better Man ....May 47. | with Down syndrome x Rove Mopets: Walsh, Robert Alliance for Technology Access Honor Thy Son A journey to communication (See also: Technology) SIBSHOPS: Workshops for with assistive technology *® Alliance for Technology Access Siblings of Children with Communication (See also: Technology) Special Needs. © Augmentative and Alternative ™ Alliance For Technology Access © When Young Children are Injured Communication Devices | Brooks, Garth © Augmentative and Alternative * Computer Resources for People Standing Outside the Fire Communication Devices, with Disabilities Sep 61, Nov 29 | music video Manufacturers of ™ Real People, Real Technology, © HEALTH INSURANCE TROUBLESHOOTER: Real Solutions | Camps, Summer Coverage for Augmentative Americans with Disabilities Act, The Selecting a Communication Devices............. Nov 68 Loving Justice: The ADA and | Cargnel, Stefano (see Roe MopeLs) | -®x Real People, Real Technology, the Religious Community | Cerebral Palsy Real Solutions Arts, The All in the Family x Rove Moots: Walsh, Robert x The Arts and Disability The Biggest Game A journey to communication x The Sky is the Limit ..........000000. .May 36 | A Date to Remember with assistive technology Ask The Doctor Dear Timmy x Too Few Exceptions to the Rule Flu & Pneumonia Vaccines * A Few Miles on the Ol’ Rocker Computers (See: Technology, Incontinence Grieving a Dream Telecommunications) a: Oct 16 | © |'m Bryan's Dad and Part Cushions (See: Seating and Positioning) Nutrition and Growth... Aug 18 | of His Team Cycling (See: Recreation) Respiratory Problems | 9% Real People, Real Technology, Transition to Oral Feedings; Real Solutions | Dating Felbamate | + Rove MooeLs: Rousso, Harilyn A Date to Remember Assistive Technology (See: Technology) Sex, Lives and Disability Deafness (See Hearing Impairments) Attention Deficit Disorder x Rove Mopets: Walsh, Robert Death (See: Bereavement) (See also: Learning Disabilities) A journey to communication Dental Care ®™ Listening to Learn with assistive technology * Growth and Development x Too Few Exceptions to the Rule Checklist 114 @ EXCEPTIONAL PARENT / JANUARY 1995 Part |: Preventing Dental Disease | Education (See also: College Education, with Daily Oral Care Educational Choice, Inclusion) | Part il: Brushing, Flossing and x 1994 Educational Program PN sd sictatesch niin Enere™ || © |'m Bryan's Dad and Part of Part lil: A Visit to the Dentist || x All Children Belong His Team Part IV: Common Pediairic || x Court Backs Private School Choice ...Feb 59 Not For a Nickel and a Dime Denta! Problems x Department of Education Upholds Rachei, Say “Hi” Special Children are at Right to Privacy What's a Tough Guy to Do?.............. Jun 45 Greater Risk x Disabilities, Opportunities, Internetworking A Whole New Ballgame irectories & Technology=DO0-IT Feminism ® Alliance for Technology Access x Friends Who Care ®x Rote Mopéts: Rousso, Harilyn ®x Inclusion and Ideology Sex, Lives and Disability © Augmentative and Alternative ® Inclusion: Rhetoric and Reality Communication Devices, x Inclusion: What It Is, What It’s Not, Gardening (See: Recreation) Manufacturers of and Why It Matters Grief © Bathroom Access Aids, | x Listening to Learn Crying Can Make You a Better Man ...May 47 Manufacturers of Commercial Online Services........... Jun 37 # Grieving a Dream Cycle and Cycle Accessory Remembering Daniel Manufacturers Disability-Related Electronic Bulletin Health Care, Education # The Parent and Professional Alliance © Disability-Related Internet Program Mailing Lists # A Bit of Teenage Savy ®™ Early Intervention Contact Persons, Health Care, Funding State-by-State # Do You Know Who Pays the Bills? ....Mar 52 Faith Group Resources Health Care, Policy # Incontinence Products, # Collaborating to Influence the Manufacturers of Health of Children x Lekotek and Compuplay Sites Health Care, Reform Racing Wheelchairs for Children, # Action Alert Manufacturers of # Editorial Report Recreation Resources # Empowering People with Disabilities Seating and Positioning Equipment and Their Families Manufacturers # Health Care for Al—Now or Never! ..Apr 56 Special Oiympics State Chapters # Health Care Reform Misses Persons Travel Resources with Disabilities # Wheelchair Manufacturers # Home Stretch for Health Care Disability Awareness ® All Children Belong x Making Inclusion Work + x Friends Who Care May 63, Oct 33 x A National Agenda For Achieving + Riding the Health Care Roller In Defense of My Daughter Mar 47 Beiter Results a cncscnnspasessitanenien Feb 36 Down Syndrome x Options +. A Window of Opportunity Cut From the Same Bolt of Cloth | @x Research: Are They Ready to Teach Health Care, Services In Defense of My Daughter Ds ciricicnrascicnccascoh Dec 54 # A Bit of Teenage Savy x A Graduation for Two x Rove Mobeis: Heumann, Judy # Collaborating to Influence the Health Honor Thy Son Part Il: OSERS chief discusses of Children Kate's Song her vision for the future & Developing a Service Provision x Making Inclusion Work x Riding the Bus Mimi, My Friend +x Senate Adopts Dole Amendment # The Hassle Factor My New Brother to GOALS 2000 Bill # The Parent and Professional Alliance x Kingsley, Jason and Mitchell Levitz: x Students With Disabilities In Regular Program Young authors challenge stereotypes Health Insurance (See also: HEALTH INSURANCE X1J6O6N1I and misconceptions Educational Choice TROUBLESHOOTER) Sense of Humor Required x Court Backs Private School Choice ...Feb 59 # Do You Know Who Pays the Bills? ....Mar 52 Standing Outside the Fire music x Inclusion: Rhetoric and Reality HEALTH INSURANCE TROUBLESHOOTER + Options © Coverage for Augmentative Communication Employment x Career Planning for People with # Funding Power Wheelchairs @ A Graduation for Two Visual Impairments # Insurance coverage for Incontinence ® National Overview x Disability Really isn’t That Romantic...Jul 46 x Parent-professional perspectives Environmental Controls (See: Accessibility) # Introducing the Troubleshooter......... ..Jul 16 x State-by-State Directory Epilepsy (See: Seizures) # Finding Your Way Through the Editoriais Medicaid Maze # Health Care Reform Fathers’ Voices # Medicaid and HMOs x Inclusion: Rhetoric and Reality Apr 39 The Biggest Game Hearing Impairments x Too Few Exceptions to the Rule Nov 31 Crying Can Make You x Rote Mopeis: Miller, Carrie a Better Man Harvard student-athlete talks Dear Timmy about growing up deaf Jun 18 JANUARY 1995 / EXCEPTIONAL PARENT @ 115 Voice Output Keyboard The Guided Tour’s 1994 INDEX Innovations for Beginners CAMP LEE MAR SUMMER CAMP AND SCHOOL Heumann, Judy (see RoLe Mope.s) FOR PERSONS WITH LEARNING Humor The Dangerous Yew AND DEVELOPMENTAL The Helmet CHALLENGES Ti. erreurs Mar 45 43rd year of camp leadership in beauti- Sense of Humor Required.................Apr 32 ful Pocono Mtns. Co-ed 5—21, balanced eoooce program geared to individual needs of Inclusion (See also: Education, Religion) RETRY SUR | BO) campers. Academics, speech & lan- LF ROCRHE J BK guage therapy, social, motor & percep- CEVES ENEMA «| tual training, daily living skills, plus eo 8h innovative recreational & athletic activi- x Inclusion and Ideology ties. Call or write for BROCHURE x Inclusion: Rhetoric and Reality Franklin Electronic Publishers’ describing unique program acclaimed x Inclusion: What It Is, What It’s Not, Language Master 6000 by parents and educators. and Why It Matters Mr. Ariel J. Segal, MSW, LSW x Making Inclusion Work SPECIAL EDITION: $490.00 Ms. Lee Morrone, MA, MS x A National Agenda For Achieving e Designed for Special Needs Users and Better Results e Keyguard $30.00 Pouch $25.00 YEAR-ROUND travel and vacation x Options experiences since 1972 for persons x RoLe Mopets: Kemp, John e Picture Communication Book: $85.00 Part |: Growing up with inclusion ..Jul 34 17 years and older with developmental x Students With Disabilities In Regular challenges. ‘|w i |t y fe mn, Classes F THE GUIDED TOUR, Inc. Mend e 7900 Old York Rd., Suite 114-B income Tax Communication System Elkins Park, PA 19027-2339 Guide to Preparing 155 East Broad St. S-325 Incontinence (215) 782-1370 Fax: (215) 635-2637 Rochester, NY 14604 # Ask Tue Doctor: Questions About (800) 724-7301 for video loan 1-800-783-5841 a Jul 50 Circle # 40 Circle # 136 *# Incontinence Resources *# Incontinence Products, Haverich Ortho-Sport, Inc. Manufacturers of 67 Emerald Street #® HEALTH INSURANCE TROUBLESHOOTER: Keene, NH 03431 (603) 358-0438 Insurance coverage for Incontinence Products Insurance (See: Health Insurance) irritability (See: Ask THE Doctor) Kemp, John (See: Rote MopeLs) Kingsley, Jason (See: ROLE MopeLs) Learning Disabilities | Europe's leading line of specialized x RESEARCH: Are They Ready to Teach | bicycles, tricycles and tandems I ieee coeekicascivcicseccocnd Dec 54 x Listening to Learn | now available in North America. Legislation (See also: Health Care, Reform; | Steel frame. Duel caliper, drum National Parent Network on Disabilities) Crime Bill “and coaster brakes available. Family Support Parking brakes standard. x Reauthorization of the Individuals with Disabilities Education Act Latest styling and wide x Senate Adopts Dole Amendment ‘choice of colour to GOALS 2000 Biil combinations. Lennox-Gastaut Syndrome * Ask the Doctor: Felbamate............... Dec 50 More than 30 specially Leukodystrophy ‘designed accessories to # AlD—Balancing Hope Against PO cach achoticcsceucecaccascesoabates Feb 53 meet every need. What's a Tough Guy to Do?............... Jun 45 Levitz, Mitchell (See: Rote Mope:s) **™ articles of interest to educators; * articles of interest to health care professionals; © articles of interest to both Circle # 166 116 @ EXCEPTIONAL PARENT / JANUARY 1995 1994 INDEX Limb Anomalies Kate's Song Our Civil War Over Residential Care..Mar 72 ®x Rove Mopets: Kemp, John | Listening to Learn Positioning (See: Seating and Positioning) Part |: Growing up with inclusion...Jul 34 Lost In the Mall! Products, New Part Il: Meeting the public Aug 34 | Mimi, My Friend © New Products Peter’s Garden............esesccssesceees May 22 | FINE OI oon cs esensecsvccesessssecceseses May 65 Media @x Riding the Bus PIII sicececseccosesvssssgvacssesenss Jun 65 x Computer Resources for People | © Riding the Health Care © New Products with Disabilities Roller Coaster © New Products Honor Thy Son Sense of Humor Required Loving Justice: The ADA and the Song of Light Religious Community ............0++. Dec 43 | Play (See: Toys) That All May Worship Point Of View Medicaid (See: HEALTH INSURANCE | x Disability Really isn’t That Romantic...Jul 46 TROUBLESHOOTER) Miller, Carrie (See: Rote MopéLs) Minorities Parent Case Management for A child’s well-being is People of Color Mobility (See also: Wheelchairs) Buying and Converting: Vans a sacred trust. * Doing What Works Best Lost In the Mall! ..............:cscsssseseeee Mar 45 e work to earn that trust by providing a pediatric team # Powered Mobility for Your Child? ......Mar 33 which includes board certified pediatricians in almost * Wheeled Mobility Selection: A Guide for Parents every known specialty. That is one reason why we were Moebius Syndrome designated by the State of New Jersey as the Children’s Hospital # Living with Moebius Syndrome Aug 68 for Bergen, Morris, Passaic, Sussex, and Warren counties. National Parent Network on Disabilities (NPND) Networking Our Pediatric Services Include... Networking Networking ¢ Adolescent Medicine © Myelomeningocele ¢ Pediatric Neurology Networking © Apnea Center Treatment © Pediatric Nutrition Networking ¢ Bronchopulmonary © Neonatal Intensive Care Program Nutrition (See: Ask THE Doctor) Dysplasia Treatment © Neonatology ® Pediatric Ophthalmology ¢ Child Development © Pediatric/Adolescent ® Pediatric Pulmonology Opinion (See: Editorials, Point oF View) Center Psychiatry © Pediatric Residency © Child Life Specialist © Pediatric Allergy/ Program Parent-Professional Relationships * Developing a Service Provision Service Immunology © Pediatric Rheumatology ¢ Children and Youth Pediatric Anesthesiology © Pediatric Subspecialty © |'m Bryan’s Dad and Part of Program ® Pediatric Cardiology Clinics ® Craniofacial Center ¢ Pediatric Dialysis Pediatric Surgery © Diabetic Care ® Pediatric Endocrinology © Pediatric Urology ¢ Early Intervention Pediatric Gastroenterology © Perinatology Program (EIP) ° Pediatric Infectious © Regional Perinatal Parenting (See also: Father's Voices) © Genetics Diseases Center All in the Family e Maternal/Infant * Pediatric Intensive Care * Swallowing Center X16A607N I Cut From the Same Bolt of Cloth Transport Service * Pediatric Nephrology The Dangerous Yew x Disability Really Isn't That Romantic...Jul 46 * We accept most . * Doing What Works Best insurance plans. An Exceptional Visit to Disnay........... Apr 25 A Father’s Gift * Easily accessible via x The First Day of School most major roadways. * The First Time For the Love of Peter + We offer both an on- Forrest Pumps: A sound-activated site garage as well as water gun needs no adaptations .Oct 40 valet parking. x A Graduation For Two Grieving a Dream The Helmet In Defense of My Daughter Circle # 17 JANUARY 1995 / EXCEPTIONAL PARENT @® 117 e p w eee me aes P Toe es ne 1994 INDEX Pyruvate Dehydrogenase Deficiency Part Il: OSERS chief discusses x Nemeth, Abranam: Creator of Nemeth Remembering Daniel her vision for the future Mar 59 code for Braille mathematics ......Sep 31 | x Kemp, John x Rousso, Harilyn: Sex, Lives and Recreation (See also: Arts, Vacation) Part |: Growing up with inclusion ..Jul 34 Disability x The Arts and Disability | Part Il: Meeting the public ™ Walsh, Robert: A journey to communication Cycling Apr 52 x Kingsley, Jason and Mitchell Levitz: with assistive technology Gardening is for Everyone! .............. May 24 | Young authors challenge stereotypes Rousso, Harilyn (See: Rote Mope.s) A Father's Gift May 19 | and misconceptions Rubinstein-Taybi Syndrome Fishing Has No Boundaries Mar 80 | x Miller, Carrie: Harvard student-athlete talks Having a Sister with a Disability Apr 68 ™ Meeting the Challenge: The President’s about growing up deaf Council on Physical Fitness........May 38 | Muizet, Jimmy: A dream of meeting Schoo! (See: College Education, Education, Peter's Garden the Pope comes true Educationai Choice, inclusion) Racing Wheelchairs for Children Racing Wheelchairs for Children, Manufacturers of Super Light, Super Strong, Recreation RESOUICES .............+00+8 May 54 x Roe Mopets: Cargnel, Stefano: Super Safe, Super Simple...the Becoming a contender............... May 28 x Rove Mopé.s: Miller, Carrie Harvard student-athiete talks Columbia Car Seat has been the about growing up deaf Selecting A Summer Camp............. .Mar 55 #1 choice Since 1986 thousoafnCo dlumsbi a Ca Special Olympics State Chapters Seats are now in use, and we have received some amazing crash stories. One ® The Sky is the Limit Standing Outside the Fire grateful father in Louisiana sent a picture of his badly crumpled van and said, music video "My 4-year-old son escaped without a scratch, did not even break his glasses." Religion One mother in Colorado wrote, "Thank you for making such a wonderful car Advocating for Access seat! I really like how comfortable [my son] is in it. On Dec. 5, 1991, we were ® Catholic Life for Children hit extremely hard on the passenger side. My 6-year-old son, a healthy 65 with Disabilit'~s pounds, was not hurt at all because your car seat held him so securely." Faith Group Resources For The Love of Peter Our years of real world @ A Jewish Education For Every Child..Dec 29 experience give you The most crash-tested Loving Justice: The ADA and the peace of mind car seat available... Religious Community knowing your child is passed for children Religious Participation For All comfortable and from 20 to 102 Ibs., Rote Mooets: Mulzet, Jimmy A dream of meeting the Pope secure in our seat! yet WEIGHS HALI comes true PLUS it's light- \S MUCH as That All May Worship..............0000000++ Dec 43 weight, easy to use, comparable ®@ Toward a More Inclusive Protestant good-looking and car Seat! Sunday School easy to care for! Vignettes: Stories of individual children’s religious participation Dec 23-40 Research # Adrenoleukodystrophy—Balancing Hope Against Reality + Are They Ready to Teach Our Kids?..Dec 54 # Brain Differences in Autism.............. Mar 66 PX6JO6NTI From Rage to Reform: What Parents Say About Advocacy Residential Care (See also: Educational Choice) NOW INCLUDES POSITIONING PAD KIT! Our Civil War Over Residential Care..Mar 72 Respiratory Problems (See: Ask the Doctor) The Columbia Car Seat is your best value! Kole Models ¢ The LIGHTEST special car seat-easy to handle! Cargnel, Stefano: Becoming Ask for our FREE ¢ Fits easily into ALL vehicles, no matter how compact! NI vicdccsduinconsasstebarnieecs May 28 x Heumann, Judy Full Color Catalog ¢ EXCEEDS all Federal safety standards! Pari |: Growing up with of convenient, ¢ Approved for car, school bus and even airplane travel! a disability helpful products ¢ Fits your choice of 4 stroller bases! (800) 454-6612 articles of interest to educators; MEDICAL Dept Cl, P.O.Box 633 * articles of interest to health care professionals; MFG. CORP. Pacific Palisades, CA 90272 © articles of interest to both _] Circ#l 1e5 0 JANUARY 1995 / EXCEPTIONAL PARENT @ 121 1994 INDEX Schools, Private (See: Educational Choice, Step-Families Getting Started with Residential Care) My New Brother Telecommunications Seating and Positioning Parents Online # Cushions, Directory of Technology (See also: Telecommunications) Vignettes: Stories of individual Manufacturers The ABLEDATA Database of online parents # Purchasing Seating Equipment: Assistive Technology Theater (See: Arts, The) Tips for Parent ..............cseecssee- Feb 45) ®x Alliance for Technology Access Toys # Seating and Positioning Equipment, x The Battery Interupter Directory of Manufacturers Forrest Pumps: A sound-activated water Seizures gun needs no adaptations # Ask the Doctor: Felbamate x Computer Resources for People *™ Lekotek Puts Possibilities into Play....0ct 46 # The First Time with Disabilities............. Sep 61, Nov 29 x Lekotek and Compuplay Sites Sexuality x Disabilities, Opportunities, Internetworking x New Products: Toys ™ Charting the Course & Technology=D0-IT x Ordinary Toys for Kids with Special Needs x Living the Course © HEALTH INSURANCE TROUBLESHOOTER: x ROLE Mopeis: Rousso, Harilyn Coverage for Augmentative Sex, Lives and Disability Communication Devices * Toy catalogs Sibling, Death of x Real People, Real Technology, x Toys For Every Child Remembering Daniel ..................+. Jun 68 Real Solutions x USA Toy Library Association Siblings x Rove Mopets: Walsh, Robert Transition (See also: Teens) Having a Sister with a Disability A journey to communication x Charting the Course If |C ould Give the World a Gift with assistive technology Travel (See: Vacation) Information Needs of Siblings x Technology Resources Trisomy 18 Joseph Nov 76 x Too Few Exceptions to the Rule Joseph Nov 76 Mimi, My Friend Teens Tuberous Sclerosis More Sibling Concerns # A Bit of Teenage Sawy # Tuberous Sclerosis Gene Identified ...Feb 53 My Brother A Date to Remember My New Brother ™ Charting the Course Vacation My Twin Sister x Disabilities, Opportunities, Internetworking Accessible Orlando ere Ju! 68 & Technology=D0-IT All in the Family Remembering Daniel A Father's Gift An Exceptional Visit to Disney SIBSHOPS: Workshops for Siblings ®x Living the Course Travel Resources of Children with Special Needs ...Sep 47 x Rove Mooets: Cargnel, Stefano: Visual Impairments Sibling Concerns Becoming a contender The Dangerous Yew Social Skills x Rove Mooé.s: Miller, Carrie PE rs cacsccsticnsecs nartcieocesd May 22 A Date to Remember Harvard student-athlete talks x Rove Mopeis: Nemeth, Abraham: ® Living the Course about growing up deaf Creator of Nemeth code for x Rove Mopéts: Rousso, Harilyn x Youth Connections Braille mathematics Sex, Lives and Disability Telecommunications (See also: Technology) Special Olympics Commercial Online Services Walsh, Robert (See: Rote Mope:s) (See: Directories, Recreation) Cruising the Internet Wheelchair Sports (See also: Recreation) Cycling Spina Bifida Disability-Related Electronic Bulletin x RoLe Mopets: Cargnel, Stefano: # Doing What Works Best # One Child's Profile ° Disability- Related Internet Mailing Becoming a contender Sports (See: Recreation) Wheelchair Tennis Championships....Dec 57 Racing Wheelchairs for Children ......May 52 SSI Benefits x Disabilities, Opportunities, Internetworking x Disability Really Isn't That Romantic...Jul 46 & Technoiogy=D0-IT ae (See also: Mobility) # Choosing a Positive SSI Stories Exceptional Parent eWorld forum # Cushion Manufacturers, Directory of.Mar 41 Halloween Magic: Making a wheelchair part of a costume HEALTH INSURANCE TROUBLESHOOTER: . Make Life Easier! Funding Power Wheelchairs Ldbidet Manufacturers, Directory of NATIONAL 1ST PLACE WINNER! Racing Wheelchairs for Children 1-000-582-4538 | Racing Wheelchairs for Children, (free brochure) Manufacturers of You'll Appreciate the INDEPENDENCE! Youth with Disabilities, National Center for Lubidet x Youth Connections (loo-be-day: a toilet attachment) Gentle, effective, nonintrusive personal cleansing. ;. Warm water wash. Warm air dry. + articles of interest to educators; Easy to Use * articles of interest to health care professionals; Lubidet uSA inc: Dedicated to Healthy Lifestyles! Right or Left Hand Use © articles of interest to both Circle # 117 122 ¢ EXCEPTIONAL PARENT / JANUARY 1995 1994 SEARCH AND RESPOND INDEX Topic Johanson-Blizzard syndrome ADHD, Community involvement and Kabuki makeup syndrome Adoptive parents Klinefelter syndrome/48,XXXY Landau-Kleffner syndrome/Asperger’s Langer-Giedion syndrome Arteriovenous malformation, Cerebral Learning disabilities, Dealing with the system. . . . Feb Arthrogryposis multiplex congenita Learning disabilities, Parents with Mar Asperger's syndrome/ Leber’s congenital amauresis Landau-Kleffner syndrome Lennox-Gastaut syndrome Augmentative communication aids Lipemas, Epidermal nevus syndrome and Autism, Puberty and Lipomyelomeningocele Autism/PDD, Muscular dystrophy and Loud noises in public Autism, Ritalin and Macroglossia Band heterotropia Meckel syndrome, Encephalocele and Benign congenital hypotonia. Monsomy 5p/Trisomy 4p Blind, Down syndrome and Motor impairments, Deafness and er Mar Multiple disabilities, Unsure about future Books for parents Muscular dystrophy, Autism/PDD and Myotubular myopathy, X-linked Nail-patella syndrome Necrotizing enterocolitis Catheterization help Neurological disorder, Progressive Be ANGE RR Ee eae eee Mar Nonoxynol-9 spermicide, Early myoclonic Cerebral arteriovenous malformation encephalopathy syndrome and Children, two non-ambulatory Norrie disease and cataplexy Chondrodysplaysic punctata Obsessive-compulsive disorder Chromosome 7 deletion Ds aie akin soa 6 a po'wk v8 nce neh Jun Chromosome 8, Partial deletion of Parent, Single, with disabilities Chromosome 10 inversion. Parents, adoptive Chromosome 22, Ring Parents with disabilities Chromosome 48,XXXX Parents with learning disability Chromosome 48,XXXY Pen pal for sibling Chromosome translocation Personal attendant, College with Pfeiffer syndrome Cochlear implants Cogan syndrome College with personal attendant Puberty, Autism and Communication, frustration with Rasmussen syndrome Community involvement, ADHD and Recreation, Therapeutic ................... ‘a Cytomegalovirus, Congenital Rhizotomy Darrow syndrome Ring chromosome 22 Daycare Ritalin, Autism and Deafness, motor impairments and Robinow syndrome PI a oikccn sce ceueniee ess.sbe us Jun School bus, Riding the Disabilities, Multiple, Unsure about future Disabilities, Parents with Disabilities, Single parent with Disabilities, Severe Disabilities, Three children with Disability awareness in public schools Down syndrome and blind Down syndrome and feeling “different”.......... Jun Down syndrome and non-verbal Single parent with disabilities Down syndrome, Two children with Skeletal anomalies Drooling Dystonia, Generalized X76A601N I Early myoclonic encephalopathy syndrome, Nonoxynol-9 spermicide and Strokes, Ischemic Encephalocele and Meckel syndrome Teeth grinding Epidermal nevus syndrome, lipomas and Therapeutic recreation . Transporting two non-ambulatory children Trisomy 4p/Monsomy 5p Trisomy 8, Partial Guillain-Barre syndrome, Chronic Twins, Identical, One with a disability Herpes encephalitis, neonatal Umbilical cord sampling................. .... May Holoprusencephaly, Semilobar iagnosed...... BATE Pere Bae (Nov/Dec 93). Mar, Apr Hypotonia, Benign congenital Inclusive school districts (New England) Inclusion, Feeling “different” Increased activity, Episodes of Ventilator dependence Voice amplification equipment Vomiting problem Werdnig-Hoffman disease Werdnig-Hoffman disease? ................-+- Mar JANUARY 1995 / EXCEPTIONAL PARENT @ 123