140 x 216mm ppc Spine: 9.5mm Person-centred practices are a key way to provide the best possible care and support for older people and to help them to be active and valued members of the community. Drawing on a wealth of experience of working with older people, the authors present the 6 Helen Sanderson, Helen Bown and Gill Bailey essential person-centred practices. Each practice is designed to support the individual and put what is Person-Centered important to and for the person at the forefront of their own support; they have been tailored so that older people can express more easily what does and does not work for them. By encouraging Thinking with people to actively listen and make each person feel appreciated, the Person-Centred Thinking practices help frontline practitioners to form good relationships with older people that they support. With supporting stories and ful- with Older PeoOplelder People colour photographs, there are many examples to help practitioners to overcome challenges and to implement positive, effective changes to care and support. 6 Essential Practices Helen Sanderson is Director of Helen Sanderson Associates and has been closely involved in the development of person-centred thinking and planning in the UK over the last 20 years. Helen Bown is Head of Policy and Research at the National Development Team for Inclusion (NDTi) and has worked in and around public services for the last 25 years, with a particular focus on improving services with and for older people. Gill Bailey trained initially as a nurse and has worked with a range of providers and commissioning units across adult health and social care for over 25 years, and in the last 10 years this has focused on supporting people living with dementia. Jessica Kingsley Publishers 73 Collier Street London N1 9BE, UK 400 Market Street, Suite 400 Philadelphia, PA 19106, USA www.jkp.com Cover design by Blue Box Design JKP Person-Centred Thinking with Older People Helen Sanderson, Helen Bown and Gill Bailey Person-Centred Thinking with Older People by the same authors Personalisation and Dementia A Guide for Person-Centred Practice Helen Sanderson and Gill Bailey Foreword by Jeremy Hughes ISBN 978 1 84905 379 2 eISBN 978 0 85700 734 6 Making Individual Service Funds Work for People with Dementia Living in Care Homes How it Works in Practice Helen Sanderson and Gill Bailey With Lisa Martin Foreword by Dr Sam Bennett ISBN 978 1 84905 545 1 eISBN 978 0 85700 975 3 Person-Centred Teams A Practical Guide to Delivering Personalisation Through Efective Team-work Helen Sanderson and Mary Beth Lepkowsky ISBN 978 1 84905 455 3 eISBN 978 0 85700 830 5 The Individual Service Funds Handbook Implementing Personal Budgets in Provider Organisations Helen Sanderson and Robin Miller ISBN 978 1 84905 423 2 eISBN 978 0 85700 792 6 Creating Person-Centred Organisations Strategies and Tools for Managing Change in Health, Social Care and the Voluntary Sector Stephen Stirk and Helen Sanderson ISBN 978 1 84905 260 3 eISBN 978 0 85700 549 6 A Practical Guide to Delivering Personalisation Person-Centred Practice in Health and Social Care Helen Sanderson and Jaimee Lewis ISBN 978 1 84905 194 1 eISBN 978 0 85700 422 2 Person-Centred Thinking with Older People 6 Essental Practces HELEN SANDERSON, HELEN BOWN AND GILL BAILEY FOREWORDS BY DOROTHY RUNNICLES AND DAVID BRINDLE Jessica Kingsley Publishers London and Philadelphia Photographs by Eddie Philips. Graphics by Julie Barclay. First published in 2015 by Jessica Kingsley Publishers 73 Collier Street London N1 9BE, UK and 400 Market Street, Suite 400 Philadelphia, PA 19106, USA www.jkp.com Copyright © Helen Sanderson, Helen Bown and Gill Bailey 2015 Forewords copyright © Dorothy Runnicles and David Brindle 2015 ® Front cover image source: Thinkstock . The cover image is for illustrative purposes only, and any person featuring is a model. All rights reserved. No part of this publication may be reproduced in any material form (including photocopying or storing it in any medium by electronic means and whether or not transiently or incidentally to some other use of this publication) without the written permission of the copyright owner except in accordance with the provisions of the Copyright, Designs and Patents Act 1988 or under the terms of a licence issued by the Copyright Licensing Agency Ltd, Safron House, 6–10 Kirby Street, London EC1N 8TS. Applications for the copyright owner’s written permission to reproduce any part of this publication should be addressed to the publisher. Warning: The doing of an unauthorised act in relation to a copyright work may result in both a civil claim for damages and criminal prosecution. Library of Congress Cataloging in Publication Data Sanderson, Helen, 1965- , author. Person-centred thinking with older people : six essential practices / Helen Sanderson, Helen Bown, and Gill Bailey ; foreword by David Brindle and Dorothy Runnicles. -- Second edition. p. ; cm. Includes bibliographical references and index. ISBN 978-1-84905-612-0 (alk. paper) I. Bown, Helen, 1967- , author. II. Bailey, Gill, author. III. Title. [DNLM: 1. Patient-Centered Care--methods. 2. Aged. 3. Personality. 4. Professional-Patient Relations. WT 31] R733 610--dc23 2014041983 British Library Cataloguing in Publication Data A CIP catalogue record for this book is available from the British Library ISBN 9781849056120 eISBN 9781784500825 Printed and bound in China CONTENTS Foreword by Dorothy Runnicles 6 Foreword by David Brindle 8 ACKNOWLEDGEMENTS 10 1. Introducton 11 2. One-Page Profles 27 3. Relatonship Circles 49 4. Communicaton 57 5. Histories 62 6. Wishing 68 7. Working and Not Working 79 8. Person-Centred Thinking and Care and Support Planning 94 9. Circles of Support 104 10. Final Thoughts 113 INDEX 14 Foreword As an older person approaching my 90th birthday and a service user of domiciliary social care for more than a decade, I am privileged to be asked to give my views about this book. Sadly, from my experience I have not had the opportunity to test out the approach so well described within it. It has not been used by any of the agencies that have provided services to me. But, as the eligibility criteria preclude me from grant aid – like 80 per cent of older people – I have established ways of achieving some degree of personal control over the support I get from a circle of friends, neighbours, family members and professional workers. However, at the moment I can still see, hear and write, so communication is reasonably easy for me. I have many friends with disabilities that make them less able to exercise choice, voice or control. For these people, their opportunities to improve their lives require a willingness and enthusiasm on the part of the service provider and this book illustrates possibilities. This book describes an approach and not a service. An essential element of this approach is about ways of communicating. Major communication problems occur for some users of services: for example, workers who have little knowledge or understanding of the English language. For some people, good communication can be achieved by body language, emotional and empathy links. But for others, better communication with users is not on the agenda. Many of us can give examples from our experiences, 6 Foreword 7 where in reality few choices were available – even with the food supply, despite a wide written menu. Theoretically, these choices existed, but they were not implemented. Systems can be perverted when the monitoring of outcomes with the customers is not in place. The use of these tools could be an exciting development that could change people’s lives. The challenge then is to turn these useful tools into wider action. Dorothy Runnicles Foreword None of us is getting any younger, but more of us are getting much older than ever in the history of humankind. The ageing of society is an astonishing gift, presenting us in the UK with an average 30 more years of life than was enjoyed by our great grandparents. One in three, perhaps one in two, babies born today can expect to live beyond 100. But older age brings challenge as well as opportunity. To lead rich and rewarding lifestyles in our later years, many of us will need care and support. And having grown up in an increasingly consumerist era, we shall want and expect choice and control over that help: who provides it, when it is provided and, most critically, how it is provided. The days of take-it-or- leave-it services are over. This book shows how to give older people true choice and control by not just asking them what they want, ticking a box marked consultation, but by involving them fully in planning their care and support as an integral part of their preferred routine. Not so much a service, more a way of life. People’s stories told in these pages demonstrate vividly what is possible when person-centred thinking is fully applied. And these are stories not only of people living independently, but also of people living in residential settings and living with disabilities and dementia. The onset of a debilitating condition does not bring with it any automatic forfeit of rights to voice, choice or control. Much has changed since the frst edition of this book appeared, not least the global recession and the unprecedented austerity regime in the UK that has hollowed out so many of 8 Foreword 9 our public services. Are person-centred thinking and practices unafordable luxuries in the harsh new world? By no means. If anything, the realities of a fresh settlement between the citizen and the state, and between the citizen and their community, call for even greater emphasis on moulding care and support around the needs of the individual – and their assets. Everyone has something to contribute. Recent exposures of poor and harmful practice in traditional care services have prompted a focus on lack of compassion on the part of care-givers. That is an important response, but being kinder and more respectful of dignity is only half the answer to the underlying problem. The other half is to embed a far greater understanding of, and respect for, the rights of the older person, their character and their preferences. Each of us is unique. It is incumbent upon care professionals, family carers and friends and neighbours to know us, and what is important to us, as we age. Person-centred thinking can cultivate that knowledge. David Brindle Public services editor, The Guardian