MICHIGAN RESOURCE GUIDE FOR PERSONS WITH TRAUMATIC BRAIN INJURY AND THEIR FAMILIES UPDATED 2013 State of Michigan Governor - Rick Snyder Michigan Department of Community Health Director - James K. Haveman Michigan Department of Community Health – Mental Health and Substance Abuse Administration Deputy Director - Lynda Zeller Michigan Department of Community Health - Medical Services Administration Deputy Director - Stephen Fitton Department of Human Services Director - Maura D. Corrigan Department of Human Services, Children’s Services Administration Director - Steve Yager Michigan Department of Military and Veterans Affairs Director and Adjutant General for Veterans Affairs - Maj. Gen. Gregory J. Vadnais Michigan Department of Education Superintendent - Michael Flanagan Michigan Department of Education - Offi ce of Special Education Director - Eleanor White Southeastern Michigan Traumatic Brain Injury System Project Director - Robin Hanks Brain Injury Association of Michigan President - Michael F. Dabbs Michigan Public Health Institute Executive Director - Jeffrey Taylor This document was prepared by the Center for Data Management and Translational Research at the Michigan Public Health Institute. Thanks to all who reviewed drafts of this document and who submitted information. This document was supported in part by a grant from the Department of Health and Human Services (DHHS) Health Resources and Services Administration, Maternal and Child Health Bureau (Grant H21MC06747). The contents are the sole responsibility of the authors and do not necessarily represent the offi cial view of DHHS. Version 8 - 2013 Michigan Resource Guide for Persons with Traumatic Brain Injury and their Families My Health Care Information Dear user: We have added this portable profi le to the Michigan Resource Guide. As you contact public and private providers, many will ask you questions about your history or heath care/rehabilitation needs. We suggest that you fi ll it out in pencil and change the information to keep it up-to-date. We hope that this will help you organize your personal health care information. This information is about (name): ___________________________________ This book belongs to: _________________ Phone: (_____) _____________ If this book gets lost, please send it to this address: ______________________________________________________________ (Street) (City) (State) (Zip) My medical condition(s) is/are: ____________________________________ ______________________________________________________________ My risk factors due to TBI are: ____________________________________ ______________________________________________________________ In Case of Emergency Emergency contact: ____________________ Phone: (_____) ___________ My hospital: __________________________ City: ____________________ My medical doctor: ____________________ Phone: (_____) ____________ I have a guardian (circle one): NO or YES (if yes, complete below) Guardian name:______________________ Phone: (_____) ___________ I have advanced directives (circle one): NO or YES My last fl u shot was (date): _______________________ My last pneumonia shot was (date): _______________________ I have allergies to: ______________________________________________ MICHIGAN RESOURCE GUIDE FOR PERSONS WITH TRAUMATIC BRAIN INJURY AND THEIR FAMILIES i My Insurance for Problems RELATED to My Injury Name of Insurance: ___________________ Claim #: __________________ Case manager name: __________________ Phone: (_____) _____________ My Insurance for Problems NOT Related to My Injury Name of Insurance: ___________________ Policy #: __________________ Medication Information My Pharmacy: _______________________ Phone: (_____) ______________ My Medications: Medication Name Medication Why I take this When I take this Dosage medication medication Rehabilitation Information My Rehab Doctor: _______________________ Phone: (_____) ___________ My Rehab Program Contact: _______________ Phone: (_____) ___________ Equipment I use in order to be independent: ___________________________ _______________________________________________________________ The company/person that fi xes my equipment: _________________________ Company/person’s Phone: (_____) __________________ I am independent in the following tasks: ______________________________ _______________________________________________________________ I need help with the following tasks: _________________________________ _______________________________________________________________ ii MICHIGAN RESOURCE GUIDE FOR PERSONS WITH TRAUMATIC BRAIN INJURY AND THEIR FAMILIES My Major Medical Events Test or treatment performed Location of treatement Date Frequently Called Numbers Organization Phone Number Notes MICHIGAN RESOURCE GUIDE FOR PERSONS WITH TRAUMATIC BRAIN INJURY AND THEIR FAMILIES iii Notes iv MICHIGAN RESOURCE GUIDE FOR PERSONS WITH TRAUMATIC BRAIN INJURY AND THEIR FAMILIES MICHIGAN RESOURCE GUIDE FOR PERSONS WITH TRAUMATIC BRAIN INJURY AND THEIR FAMILIES v vi MICHIGAN RESOURCE GUIDE FOR PERSONS WITH TRAUMATIC BRAIN INJURY AND THEIR FAMILIES MICHIGAN RESOURCE GUIDE FOR PERSONS WITH TRAUMATIC BRAIN INJURY AND THEIR FAMILIES vii Table of Contents Introduction How to Use this Guide ................................................................................... 1 What if a Needed Service Is Denied? ............................................................... 3 Section I: Overview of Traumatic Brain Injury What Is Traumatic Brain Injury? ...................................................................... 5 Traumatic Brain Injury Is Common .................................................................. 6 Effects of Traumatic Brain Injury ..................................................................... 7 Effects on Families ........................................................................................ 9 Important Laws ............................................................................................ 9 General Resources ..................................................................................... 11 Books Written by Persons with Traumatic Brain Injury or Their Families .............. 16 Section II: Commonly Needed Services Advocacy Organizations and Legal Services ................................................... 17 Assessment and Rehabilitation ..................................................................... 22 Assistive Technology ................................................................................... 26 Living and Care Arrangements (Including Housing and Long-Term Care) ............. 31 Public Education ......................................................................................... 43 Transportation ........................................................................................... 51 Substance Use Disorders ............................................................................. 53 Mental Health ............................................................................................ 54 Caregiver Support and Respite Relief ............................................................. 55 Vocational Rehabilitation and Employment ...................................................... 58 Section III: Financial Support for Health Care and Lost Income Introduction ............................................................................................... 63 No-Fault Automobile Insurance ..................................................................... 63 Michigan Department of Community Health’s Crime Victim Compensation Program ................................................................................................... 64 Workers’ Compensation ............................................................................... 65 Social Security Administration ....................................................................... 65 Medicare .................................................................................................... 66 viii MICHIGAN RESOURCE GUIDE FOR PERSONS WITH TRAUMATIC BRAIN INJURY AND THEIR FAMILIES