Annual IL Outcomes Survey FY16 Center Name Response Response Answer Options Percent Count Access II Independent Living Center 1.8% 81 BAILS (Bootheel Area Independent Living Center) 8.0% 359 DCAI (Disabled Citizen Alliance for Independence) 7.7% 345 DCIL (Delta Center for Independent Living) 1.5% 66 DRA (Disability Resource Association) 7.5% 338 HILC (Heartland Independent Living Center) 2.2% 98 ILCSEMO (Independent Living Center of Southeast 6.3% 283 ILRC (Independent Living Resource Center) 1.8% 83 LIFE (Living Independently for Everyone) 1.9% 85 MERIL (Midland Empire Resources for Independent 4.3% 194 NEILS (North East Independent Living Services) 2.5% 114 OIL (Ozark Independent Living) 1.0% 44 OMO (On My Own) 1.7% 75 PQ (Paraquad) 11.3% 507 RAIL (Rural Advocates for Independent Living) 3.0% 137 SADI (SEMO Alliance for Disability Independence) 1.1% 50 SCIL (Southwest Center for Independent Living) 5.2% 235 SIL (Services for Independent Living) 5.4% 244 TCIL (Tri-County Center for Independent Living) 1.2% 55 TILC (The Independent Living Center) 4.1% 185 TWP (The Whole Person) 15.9% 715 WILS (West Central Independent Living Services) 4.5% 201 Answered Question 4494 Skipped Question 0 Center Name C Access II Independent Living Center BAILS (Bootheel Area Independent Living Center) ■ C DCAI (Disabled Citizen Alliance for Independence) C DCIL (Delta Center for Independent Living) DRA (Disability Resource Association) ■ C HILC (Heartland Independent Living Center) ILCSEMO (Independent Living Center of Southeast Missouri) ■ C ILRC (Independent Living Resource Center) LIFE (Living Independently for Everyone) ■ MERIL (Midland Empire Resources for Independent Living) ■ C NEILS (North East Independent Living Services) C OIL (Ozark Independent Living) OMO (On My Own) ■ PQ (Paraquad) ■ RAIL (Rural Advocates for Independent Living) ■ SADI (SEMO Alliance for Disability Independence) ■ a SCIL (Southwest Center for Independent Living) C SIL (Services for Independent Living) C TCIL (Tri-County Center for Independent Living) C TILC (The Independent Living Center) C TWP (The Whole Person) C WILS (West Central Independent Living Services) Annual IL Outcomes Survey FY16 Total Number of Consumers served in Missouri by 22 Centers for Independent Living: 25,118 Ages of Consumers served Gender of Consumers served Unavailable 50 60 & Older 10,112 25 to 59 13,419 8,995 Females 20 to 24 571 Males 16,123 5 to 19 880 Under 5 86 - 5,000 10,000 15,000 Race and Ethnicity of consumers served Disabilities of Consumers served 135 292 88 180 130 4,736 508 1,184 1,243 Cognitive American Indian Mental Asian Physical Black 28 Hearing Native Hawaiian 11,026 Vision White Multi Hispanic/Latino Other Two or more races 11,315 Race/ethnicity unknown 19,529 568 1,042 Annual IL Outcomes Survey FY16 Services requested and received by consumers 3,544 Other Services 4,908 1,043 Vocational Services 1,499 2,002 Youth/Transition 2,549 2,963 Transportation 3,519 1,337 Therapeutic treatment 1,357 70 Rehabilitation Technology 134 2,775 Recreational 2,994 10 Prostheses & Orthotics 28 2,806 Preventative 2,903 36 Physical Restoration 2,777 36,210 Pers. Assistance Services 39,390 2,833 Received Peer Counseling 3,523 Requested 97 Mobility Training 35 6 Mental Restoration 1,231 51,641 Information & Referral 55,331 7,993 IL Skills Training 9,753 3,130 Housing, Home Mod. & Shelter 4,207 1,620 Family Services 2,266 51 Counseling 141 1,964 Communication Services 2,445 168 Children's Services 274 7,879 Assistive Technology 10,685 4,755 Advocacy/Legal Services 5,895 - 10,000 20,000 30,000 40,000 50,000 60,000 Annual IL Outcomes Survey FY16 Goals set to increase independence in a significant life area Other Community/Social Relocation Personal Resource Info Access Self care Goals in Progress Goals Achieved Vocational Goals Set Educational Community Mobility Communication Self Advocacy - 2,000 4,000 6,000 8,000 10,000 12,000 14,000 16,000 Improved access to Transportation, Health Care Services and Assistive Technology Assistive Tech In Progress Health Care Achieving Access Requiring Access Transportation - 2,000 4,000 6,000 8,000 10,000 12,000 14,000 Annual IL Outcomes Survey FY16 Are you a United States Veteran? Response Response Answer Options Percent Count Yes 8.9% 377 No 91.1% 3867 Answered Question 4244 Skipped Question 250 Are you a United States Veteran? Yes No Are you eligible for Missouri Medicaid? Response Response Answer Options Percent Count Yes 80.7% 3424 No 15.2% 645 I don't know 4.1% 175 Answered Question 4244 Skipped Question 250 Are you eligible for Missouri Medicaid? Yes No I don't know Annual IL Outcomes Survey FY16 Are you a registered voter? Response Response Answer Options Percent Count Yes 74.2% 3143 No 25.8% 1090 Answered Question 4233 Skipped Question 261 Are you a registered voter? Yes No Do you vote for elected officials? Response Response Answer Options Percent Count Yes 86.8% 2732 No 13.2% 414 Answered Question 3146 Skipped Question 1348 Do you vote for elected officials? Yes No Annual IL Outcomes Survey FY16 Did you receive any Advocacy services? Assistance and /or representation in obtaining access to benefits, services, and programs to which a consumer may be entitled. Response Response Answer Options Percent Count Yes 22.2% 933 No 77.8% 3278 Answered Question 4211 Skipped Question 283 Did you receive any Advocacy services? Assistance and /or representation in obtaining access to benefits, services, and programs to which a consumer may be entitled. Yes No What was your experience with the ADVOCACY services you received? Response Response Answer Options Percent Count Satisfied 94.5% 880 Somewhat Satisfied 3.9% 36 Dissatisfied 1.6% 15 Answered Question 931 What was your experience with the ADVOCACY services you received? Satisfied Somewhat Satisfied Dissatisfied Annual IL Outcomes Survey FY16 If you chose, Somewhat Satisfied or Dissatisfied, please describe how the Advocacy service could have been better. Answered Question 38 Skipped Question 4456 1 Helped with budgeting, money, and stuff like that 2 Dissatisfied, was lead to believe that there were grants to help her with her Vehicle. Was not able to get in the seat to help her. Found out she had to do everything yourself. There were no grants to help her. 3 If you are talking in front of a politician, I struggle to get things. It was a mock interview. It is hard for people on the spectrum to do things like talking in public. It was unexpected to come up with ways for what should be done about healthcare. If there was another way my voice could be heard.(cid:13) 4 Under guardianship. It was the medication I was on, no one will listen. So I have hired an attorney. 5 I had my voter registration confirmed - I was not registered since I moved and I am not able to vote this election cycle because I didn't check early enough to change address in a different county 6 Was only meant to be temporary, too basic for PT 7 Did not get to move out of nursing home for various reasons 8 Assisted consumer in advocating for Medicare. She ended up not qualifying. She reported she was dissatisfied because she felt that while one of the staff had been nice the other staff she had worked with had not been very helpful and didn't really try. She stated she also still needs help with her medical needs. 9 I was denied disability 10 need lighted door alarm - don't qualify 11 She seemed nervous and made me nervous. If she was more oriented and comfortable with what she was doing, tasks would go smoother. 12 Attendant was somewhat to be desired, not enough attendants, list outdated, never got callback or showed up, need to be updated and small. 13 I don't think I need the help. 14 Still in process 15 Telephony Phone service could be improved. Numbers are changed 16 I was at first satisfied until I got a letter closing me when I wasn't satisfied yet 17 Had to look on my own for housing. and I don't have a lot of income. all that is based on how much you 18 hHaevlpee. d get a shower installed but it wasn't a great experience because they were left without a shower and toilet for 4 months. Did tell CIL about the incident and they helped get it resolved. Annual IL Outcomes Survey FY16 Did you gain knowledge, skill and/or independence from the ADVOCACY service? Response Response Answer Options Percent Count Yes 92.5% 861 No 7.5% 70 Answered Question 931 Skipped Question 3563 Did you gain knowledge, skill and/or independence from the ADVOCACY service? Yes No Did this ADVOCACY service make a positive change in your life? Response Response Answer Options Percent Count Yes 92.4% 854 No 7.6% 70 Answered Question 924 Skipped Question 3570 Did this ADVOCACY service make a positive change in your life? Yes No Annual IL Outcomes Survey FY16 If Yes, what change did this ADVOCACY service make? Answered Question 537 Skipped Question 3957 1 Better understanding of what should be asked for. 2 Just making sure we are taken care of. 3 Improved relationship with the school district. 4 Helping me talk with DHSS. 5 I got help with getting Medicaid and Social Security. The paperwork was confusing. They helped me with all paperwork and getting healthcare. I now receive SSA benefits each month. I could not have stayed in my home without it. 6 I received Medicare help. I was very confused. I am paying less for my Medicare. This is very helpful. I have more income now. 7 I received help with getting Blind Pension. I did not know I could get. This gives me additional income to stay in my home. 8 I did not know what I was eligible to get. I am know receiving Medicare and Social Security. This is so helpful. I did not have health insurance before and I could not work. I have income and can stay in my home. 9 I get help with my Medicaid, Medicare. I have my property taxes prepared. This all saves me money and I receive money from filing my property tax. This helps me live on my own. 10 I received information on Medicare savings. I received help with this. I now pay less for my Medicare. 11 I received help with the Healthcare Market place. I received assistance with applying for insurance. 12 I received help with all paperwork for Social Security and Medicare assistance. I could not have done this on my own. very helpful and nice. 13 I have a better understanding of my health insurance through Medicaid. I pay a spend down and now I know how to meet it. 14 I received help getting health insurance through the healthcare market. I also got a tax credit that helps me to pay my insurance. 15 I have a better understanding of benefits available to me. 16 Stand up for myself. 17 It helped me get the apartment fixed for me and communicated with the landlord to get everything done. 18 Knowledge 19 Helped with transition into the community. 20 I am feeling empowered to get out and move toward independent living, interact with people, and take charge of my overall well being. 21 I felt like I was heard. They (election board) agreed to work with the disabled community to make sure there were no other mistakes made. 22 Comfort of knowing someone is there in case needed. 23 It helped me understand things I didn't understand. 24 Advocated for consumer to get CDS she reported she had no problems with this process and is satisfied with the services she is receiving. 25 Consumer reported that he was satisfied with the service and that he gained knowledge and independence. 26 Advocated with Veterans for services needed(cid:13) 27 You guys are an awesome organization! 28 Both physically and mental, very nice people very professional. 29 She received information on tax filing as she was not getting her Federal and State Income taxes that were withheld on her check. 30 Learned I was not ready to leave Nursing Home 31 It has helped me understand how much money I make and what will happen to my money if something happens to my parents. I also have a job a MAG and love having a job. I feel more independent now.