DOCUMENT RESUME RC 020 666 ED 398 012 Burhansstipanov, Linda, Comp.; Barry, Kathleen AUTHOR Cooleen, Comp. Cancer Education Resources for American Indians and TITLE Alaska Natives. Supplement to Native American Monograph No. 1: Documentation of the Cancer Research Needs of American Indians and Alaska Natives. National Cancer Inst. (NIH), Bethesda, Md. INSTITUTION REPORT NO NIH-94-3706 PUB DATE Jan 94 NOTE 74p. AVAILABLE FROM National Cancer Institute, Cancer Information Service, Bldg. 31, Rm. 10A161, 9000 Rockville Pike, Bethesda, MD 20892. Reference Materials PUB TYPE Bibliographies (131) EDRS PRICE MF01/PC03 Plus Postage. *Alaska Natives; American Indian Culture; *American DESCRIPTORS Indians; *Cancer; *Culturally Relevant Education; Disease Incidence; Health Education; *Health Materials; Health Promotion; Nutrition; Physical Health; *Prevention; Readability Formulas; Resource Materials; Smoking IDENTIFIERS *Native Americans ABSTRACT This directory provides information on cancer education materials that have been developed specifically for American Indians and Alaska Natives. The goal is to develop and implement culturally appropriate cancer prevention and control programs for Native Americans. The directory includes a matrix of cancer education materials that identifies resources for a particular audience or cancer site. In this matrix, the 52 titles are arranged in alphabetical order and include information on the format, readability rating, applicable cancer sites, target audience, cultural/ethnic audience, and whether the item focuses on diet. The remainder of the directory provides additional information on each entry, including the title, producer, publication date, availability, format, target audience, content description, and readability rating. Formats include leaflets, fact sheets, pamphlets, booklets, books, posters, videotapes, and other materials. Included are instructions and a worksheet for determining readability ratings, and an index that arranges titles by producer or distributor. (LP) *********************************************************************** Reproductions supplied by EDRS are the best that can be made from the original document. *********************************************************************** U IS DEPARTMENT OF EDUCATION °Noce of Educations! Research and Improvement EDUCATIONAL RESOURCES INFORMATION CENTER (ERIC) 04 document has been reproduced as received from the person or organaation es 1111:241.. onginating it 0 Minor changes have been made to improve reproduction quality Points of view of opinions stated in this docu - ment do not necessarily represent official OERI position or policy 4-40 .4 4' . .atiems Viso Supplement to Native American Monograph No. 1: Documentation of the Cancer Research Needs of American Indians and Alaska Natives MES Linda Burhansstipanov. Native American Cancer Control Special Populations Studies Branch Kathleen Cthileen Barry Cancer Gmtrol Program Specialist Office of the Associate Director Cancer ContnA Science Program Division of Cancer Prevention and Control National Cancer institute Bethesda, Maryland I ll'MAN SERVICES U.S. DEPARTMENT OF IlEALD1 ANI ) Puhlic llcalth Service National Institutes of 1 lealth NIII Publication No. 9 0-06 January 1994 3 ea** Introduction 1 Acknowledgments 3 How To Use This Directory 5 7 Key To Selecting Cancer Education Materials Materials Ahnomial Pap Test Results. Understanding Your Diagnosis and Treatment 13 Better Choices: The American Cancer Society's Program To Help You Reduce Your Risk of Cancer 14 Breast Cancer 15 Cancer Mortality Among Native Americans in the United States: Regional Differences in Indian Health. 1984-1988, and Trends Over Time, 1968-1987 16 Cancer Runs in Certain Circles 17 Need a Mammogram Chances Are . You 18 . . Children Are the Future: Give Yours a Healthy Start 19 Children Are Our Future: Give Yours a Healthy Start 20 Enjoy the Gift of Health Continue the Circle: 21 Does Your Child Smoke? 22 Eat More Fruits and Vegetables: S a Day for Better !health 23 Eat More Salads for Better Health 24 Eat To Live 25 Eating Healthy the Alaska Way 26 Eating Healthy the Alaska Way Eating Healthy the American Indian Way: Why All the Talk About Fat? 28 Eating Healthy the American Indian Way: Why All the Talk About Fiber? 29 Having a Pelvic Exam and Pap Test 30 Health Risks and Preventive Care Among Older American Indians and Alaska Natives 31 !low To Examine Your Breasts 32 It's Never Too Late To Quit' 33 It's Never Too Late To Quit Smoking 3-1 It's Your LifeIt's Our Future: Stop Smoking Guide 35 Keep Our Health Traditional: Keep Tobacco I. Traditional 36 Let's Eat I fealthy! 5 Simple Tips To Lower Dimly Risk of Cancer Little Sister Mouse 38 Malam Nau Yahiwapo: Women's Gathering Place 39 4 40 A Mammogram Could Save Your Life 41 Mouth Cancer Runs in Certain Circles A New Beginning. Return to Thaditional Tobacco Use, Renew Our .4) Tribal Values. Rededicate Ourselves to Healthy Traditions Bring Them Into Our American Indian Children Are Our Future: 43 Health and Tradition Our American Indian Children DeserVe a Healthy Future and Healthy 44 Don't Smoke for Your Children's Sake Traditions: 45 It Can Save Your Life! The Pap Test: .46 The Pathway to Health 47 Pull Together: Quit Smoking ... 48 and Healthy Smoke-Free 49 Activity 13ook: Grades K-6 Smokeless Tobacco: Smokeless Tobacco: Teachers Guide So SI Take Care of Your Breasts 52 Take Care of Yourself 53 10 Steps to a Ilealtbier Life Take Control: 54 Taking Care of Your Health: The Pap Test and Ceivical Cancer 55. Tobacco Control Educatit in Pnigram Tobacco Is Traditional to American Indian People: Cancer Is 56 Not Traditional ;- It \Vas Never Meant To Be Abused Tobacco: Don't Let It Become Tobacco Was a Gift From Our Great Spirit: 58 Our Death 59 Traditional Foods Can Be I lealthy 60 Traditional l'se of Tobacco 61 We Are the Circle of Life: Pass on the Gilt of I lealth 62 What Men Should Know About Cancer 63 What Women Should Know About Cancer W:thdrawal From Smoking: Dealing With the Effects 6.4 ()- Appendix: SMOG Readability Formula Index of AuthoN i)11)ducer. and Distributt as 71 Cancer Education Resourcesfor American Indians andAlaska Natives is designed to assist in the development and implementation of cancer prevention and This directory is not all-inclusive: it control programs among Indigenous Peoples. provides examples of the types of materials that currently are being developed by and for Native Peoples throughout the United States. Although attempts have been made to review all this information, inclusion of materials in this directorv does not necessarily imply endorsement by the National Cancer Institute (NCI). During the summer and fall of 1991. the Network for Cancer Control Research Among American Indian and Alaska Native Populations surveyed approxi- mately 2.800 Native American organizations. The purpose of this survey was to determine what types of culturally appropriate cancer informational materials or programs are currently available to Indigenous Peoples in the United States. Of the 450 (16.1 percent) organizations that responded, 264 (58.- percent) indicated that they provide cancer education programs. Of these 264 organizations. 133 indicated that they provide general information about cancer. The Network for Cancer Control Research Among American Indian and Alaska Native Populations shared the summary information from this survey with NCI followed up by obtaining cancer education materials from these NCI staff. organizations and others for inclusion in a directory of resources, NCI is currently funding eight Native American cancer research projects. Each of these projects has developed and pretested cancer information resources among their respective Native American populations. Information on the availability of these materialsincluding posters. pamphlets, videotapes, curricula, training manuals, and other itemswill be available after the summer of 1994. As is true with most underserved populations. Native Americans need cancer education and information that is designed and as ailable in culturally appropriate methods and materials. When Native :Americans are asked to review cancer education materials that have been developed for other populations. sudi as whites or African Americans. the common response is -It is too bad those people get that disease.- When tokl that Native Peoples also have cancer. the response is -No, . we must not get there is nothing in that pamphlet about us . it." , Native Americans need to be apprised of the growing cancer probkm among this population, as well as ways to pre% ent and conts)1 this chronic disease. Additional materials are There continues to be a dearth of information available. needed on the prevention and control of cancer in certain sites, which are increasing among Indigenous Peoples and or have disproportionAely high incidence or mortality rates among Native Americans compared with other racial or ethnic groups. such as whites, African Americans. and Hispanics. These cancer sites include. hut are not limited to, lung, colon and rectum. breast. prostate. cervix. stomach, pancreas. and 6 gallbladder. Cancer prevention materials are needed on each of the common cancer sites as well as those that occur at a disproportionately high rate in Native Americans. For example. materials on the prevention and control of tobacco use are needed to prevent young people from starting to smoke or chew tobacco: however, these materials also need to recognize and respect the traditional use of tobacco within Native cultures. Prevention materials also need to be realistic as well as informative. NCI's 5-a-Day campaign. which encourages people to consume five servings of fruits and vegetables daily, needs to be adapted by Native American cultures to include means of increasing access to fruits and vegetables where availability and cost are primary harriers to participating in this valuable NCI program. ,.2 Many Native Peoples do not participate in recommended screening and early detection programs because they are unaware of the availability of these services. They are not recruited into clinical studies because the informational materials are often culturally inappropriate and. as a result. misundeNtood. There are additional reasons for little to no participation in these types of programs and studies, but the lack of cuhurally sensitive materials is an initial barrier that needs to be eliminated. There has been an emerging health promotion movement among Native Americans over the last few years. Cancer prevention and control efforts need to be Prevention is the wisest approach to this included in these health promotion efforts. disease, and we need accurate. feasible, culturally sensitive education and informa- tional materials designed for Native Americans to assist Indigenous Peoples in taking control of their lives and the well-being of their communities. Linda Burhansstipanov, Dr.P.H. Former Program Director Native American Cancer Research Program National Cancer Institute 7 BEST COPY AVAILABLE The Special Populations Studies Branch of the National Cancer Institute ishes to thank the following individuals who contributed to the development of this directory: Members of the Network for Cancer Control Research Among American Indian and Alaska Native Populations Mark B. Dignan. associate professor. and Sharon Johnson. secretary. Department of Family and Community Medicine, Bowman Gray. School of Medicine Michael Arfsten. former director. American Indian Health Care Association Pow 101140144 Dao To hdp readers. this directory includes a matrix of the cancer education materials described herein. Titles are arranged in alphabetical order. For each title, the matrix indicates the format, readability rating, applicable cancer sites, target If publica- audience. cultural!ethnic audience, and whether the item focuses on diet. tions are needed for a particular audience or cancer site. users can consult the matrix. The presentation of each entry includes the title, producer. publication date, availability. fonnat, target audience, content description, and readability rating. Fonnats are defined as follows: Leafletsheet of paper containing printed matter. folded once or more: Fact Sheetlist or brief information summary on specific subject on single sheet of paper. unfolded: Pamphletbound publication (usually stapled) of up to 15 pages: Bookletlx)und publication of more than 15 pages but fewer than 80 pages: Bookbound publication of more than 80 pages: Posterlarge printed or written single sheet of paper to he displayed in public place: Videotapemagnetic tape upon which audio and video signals are recorded for playback through television receiver: and Othermaterial such as refrigerator magnets or tent cards. Publications that have "Not applicable- under the Readability Rating do not contain a sufficient amount of text to evaluate and are generally considered very easy. The appendix contains the instructions and worksheet used for determining readability ratings. Users may determine the readability rating of other cancer education materials using this appendix. The index arranges titles by author, w ducer. and distributor. 1 ) ) ) ) I w 1 E : ; 1 : l ( 1 i ! , y I l t 1 1 8 r ) s 1 a 1 1 r V ! m o I r I 4 I m u , 1 . ( 1 u o 1 ; ) 1 1 L t l I 1 . 1 ) r I 0 I \ 1 . u h p U p i t 1 i 1 m A ' , , t 1 1 1 1 1 1 p J . . 1 i 1 . k m r 1 . 1 1 l ; 1 . I 0 1 1 , a t . ) I . 1 1 . 1 0 . J . n . I 1 ) 1 1 J - u . ! 1 . . . 1 1 1 1 I 1 s : 1 1 3 1 . V 1 1 t 1 . . U ) 1 1 1 m r . 1 . V C t 1 1 1 0 s I 1 i 1 1 1 1 1 1 I V I u 1 . 1 . 1 1 1 L d 1 ) 1 1 1 m 0 w . 1 U 1 1 h i S . . 1 . ( 1 ; r o 1 4 1 . 0 8 m . s I I N 1 r 1 J o 1 I ) m l . 1 ( M i U 1 i . . t p 1 I l . d 1 r f : 9 1 u M t 1 : j - . u i 6 i l m p r . I 1 . 1 L f . ) . 6 . ' 9 , . x 1 . L r ; y x A m i 1 1 8 , . v u 8 l A . u A , 1 u , 1 ) I 1 1 8 P > . ( J - : t 1 8 : 1 , I n 1 1 1 y . I ' 1 1 v . 1 1 1 . i 1 1 1 l 1 ( 1 t I , 1 l 1 l 1 1 1 1 6 U m ) ! 1 i 1 1 1 . 1 J 1 ) 1 I 0 1 . 1 . . . 8 1 1 I . 1 1 T 1 . 1 i r 1 . 1 P 1 1 Z I 1 1 1 _ 1 D r 1 . . . 1 1 ' x . i 1 . 1 ' ' . . 4 U I 1 h . 1 1 , 1 1 1 1 r . 0 ! 1 I ) N 1 1 : S i . . . t p A 1 1 . s 9 1 P p 1 1 h l 1 1 l 1 u : 1 U l 1 i 1 a 1 . m % r . . p u ( J . . ) 1 i ) 7 A 1 p l . 1 1 u 1 . . o x 1 . 1 1 n A 1 s . . 0 1 1 7 1 r . 1 1 1 . 1 l d c . r I r 1 + u 1 1 1 s K 1 l 1 K 1 I u , . 1 1 - . ( , 1 0 1 9 d 1 , . 1 1 p 1 1 1 i 1 . . . a v 1 1 1 1 . I j . . . 1 1 I ! u m ( v : r r i t I n u . ) : V N > 5 1 . I . A L . y m o u . . V I V I . I ( 1 1 : ) : A 0