AAppppaallaacchhiiaann SSeellff--IIddeennttiittyy aanndd EEffffeeccttss oonn HHeeaalltthh BBeehhaavviioorrss Mark Dignan University of Kentucky BBaacckkggrroouunndd:: CCoonnffeerreennccee PPuurrppoossee • To share and disseminate health-related disparities research findings •• TToo iinnccrreeaassee tthhee ppaarrttiicciippaattiioonn ooff hheeaalltthh professionals, community stakeholders, and others to become involved in evidence-based efforts to eliminate health disparities in Appalachia TThhee AAppppaallaacchhiiaa CCoommmmuunniittyy CCaanncceerr NNeettwwoorrkk ((AACCCCNN)) Supported by the National Cancer Institute Center to Reduce Cancer Health Disparities 1 U01 CA114622 (2005-2010) 3 TThhee AACCCCNN iiss oonnee ooff 2255 NNCCII CCoommmmuunniittyy NNeettwwoorrkkss tthhaatt ffooccuuss oonn rreedduucciinngg ccaanncceerr hheeaalltthh ddiissppaarriittiieess iinn uunnddeerrsseerrvveedd aanndd//oorr mmiinnoorriittyy ppooppuullaattiioonnss AACCCCNN OOvveerraallll GGooaall The overall goal of the ACCN is to contribute to the reduction of cancer hheeaalltthh ddiissppaarriittiieess iinn AAppppaallaacchhiiaa through education, research, and training. OOrrggaanniizzaattiioonnaall SSttrruuccttuurree Steering Committee Chair: Mark Dignan ACCN Leadership Team Barbara Wingrove, NCI Project Officer 5 Community Advisory Committee Members Chair: Mark Dignan External CBPR Expert Samuel Lesko, Clinical Expert 5 Regional PIs Project Management Team 5 Regional PIs (Ex-Officio) 5 Regional Project Managers Chair: Mark Cromo Evaluator 5 Regional Project Managers ACCN Community Community Representatives Advisory Committee Chair: Elected by group Research Task Force Evaluation Task Force 55 RReeggiioonnaall CCoommmmuunniittyy AAddvviissoorryy BBooaarrdd MMeemmbbeerrss Chair: Electra Paskett CChhaaiirr:: DDaavviidd RRooyyssee (1 from each region) Community Representatives Community Representatives Jim Bohland Clinical Coordinator Cathy Coyne Biostatistician Regional PIs, Co-Is, PMs, PD Dissemination Task Force Regional Community Chair: Pamela Brown Community Representatives Advisory Boards Volunteer Regional PIs, Co-Is, PMs, PD (Determined by each region) UK OSU PSU VPI WVU CCoonntteexxtt • History • Socioeconomic characteristics • Burden of cancer and other chronic diseases •• IInnfflluueennccee ooff ccuullttuurree LLBBJJ DDeeccllaarreess WWaarr oonn PPoovveerrttyy On April 24, 1964, Lyndon and Lady Bird Johnson visited Inez, Ky., and the property of Tommy Fletcher, a father of eight whose living conditions epitomized the squalor that characterized Appalachia for decades. On Fletcher's porch, Johnson declared the War on Poverty. (AP Photo) CCuullttuurraall IIddeennttiittyy • Cultural identity is the (feeling of) identity of a group of culture, or of an individual as far as she/he is influenced by her/his belonging to a ggrroouupp oorr ccuullttuurree (http://en.wikipedia.org/wiki/cultural identity) CCuullttuurraall IIddeennttiittyy AApppplliieedd ttoo AAppppaallaacchhiiaa • Place-based orientation • Family centered decision making •• RRuurraall rreessiiddeennccee aanndd iittss pprrooss//ccoonnss • Independence and self reliance